{"id":3535,"date":"2019-10-05T23:47:08","date_gmt":"2019-10-06T03:47:08","guid":{"rendered":"https:\/\/natural-womanhood.local\/?p=3535"},"modified":"2024-05-18T18:07:30","modified_gmt":"2024-05-18T23:07:30","slug":"comment-jai-ete-expulsee-dun-groupe-facebook-sur-les-effets-secondaires-de-la-contraception","status":"publish","type":"post","link":"https:\/\/naturalwomanhood.org\/fr\/how-i-got-kicked-out-of-a-facebook-group-on-birth-control-side-effects\/","title":{"rendered":"Comment j'ai \u00e9t\u00e9 expuls\u00e9e d'un groupe Facebook sur les effets secondaires des contraceptifs"},"content":{"rendered":"

Depuis que j'ai commenc\u00e9 mes recherches sur les effets secondaires des contraceptifs et leurs cons\u00e9quences sur la sant\u00e9 pour mon livre <\/span>Au nom de la pilule<\/span><\/i><\/a>J'ai \u00e9t\u00e9 choqu\u00e9e d'apprendre que de nombreuses femmes n'ont pas \u00e9t\u00e9 correctement averties des risques r\u00e9els li\u00e9s \u00e0 la prise de st\u00e9ro\u00efdes fabriqu\u00e9s en usine.\u00a0<\/span><\/p>\n

Un de mes coll\u00e8gues avec qui je discute de ces questions m'a dit qu'il discutait souvent avec des femmes de ces risques pour la sant\u00e9, et j'ai remarqu\u00e9 que bon nombre des conversations dont il me parlait s'\u00e9taient d\u00e9roul\u00e9es en ligne. Je n'ai donc pas pu m'emp\u00eacher de lui demander : \"Comment se fait-il que tu rencontres autant de femmes en ligne ?\" Il m'a r\u00e9pondu que c'\u00e9tait principalement gr\u00e2ce \u00e0 des groupes Facebook.\u00a0<\/span><\/p>\n

Intrigu\u00e9e, j'ai commenc\u00e9 \u00e0 chercher un groupe sur les effets secondaires des contraceptifs. J'en ai rejoint un qui comptait plusieurs milliers de membres. Mon objectif premier \u00e9tait de voir de quels types d'effets secondaires les femmes discutaient. Je voulais savoir quelles \u00e9taient leurs principales pr\u00e9occupations et voir si je n'avais pas n\u00e9glig\u00e9 certaines complications courantes dans mes recherches.<\/span><\/p>\n

En parcourant les articles archiv\u00e9s, aucun des effets secondaires ne m'a surpris : migraines, baisse de la libido, r\u00e8gles abondantes, crampes s\u00e9v\u00e8res...\u00a0<\/span><\/p>\n

Ce qui m'a surprise dans ce groupe Facebook, c'est l'empressement avec lequel les administrateurs et les contributeurs fr\u00e9quents assuraient aux femmes qu'il n'y avait pas lieu de s'inqui\u00e9ter. Quel que soit le caract\u00e8re alarmant de l'effet secondaire, ils donnaient des r\u00e9ponses telles que \"Cela me semble tout \u00e0 fait normal\" et \"Laissez \u00e0 votre corps le temps de s'adapter\".<\/span><\/p>\n

Quand les effets secondaires graves sont mis sous le tapis<\/h2>\n

Je suis rest\u00e9e discr\u00e8te pendant seulement deux jours et demi. C'est alors que j'ai vu un message d'une jeune femme atteinte d'une maladie auto-immune rare du tissu conjonctif. Apr\u00e8s avoir re\u00e7u le NuvaRing, elle avait remarqu\u00e9 des changements substantiels dans les sympt\u00f4mes de sa maladie. De plus, sa tension art\u00e9rielle avait grimp\u00e9 en fl\u00e8che.\u00a0\u00a0<\/span><\/p>\n

Les habitu\u00e9s avaient d\u00e9j\u00e0 fait part de leurs assurances lorsque j'ai vu le message. La plupart d'entre eux ont affirm\u00e9 que leur tension art\u00e9rielle avait augment\u00e9 au d\u00e9but puis s'\u00e9tait normalis\u00e9e, ou ils ont racont\u00e9 qu'ils avaient souffert de douleurs articulaires, mais un membre du groupe a sugg\u00e9r\u00e9 qu'elle devrait arr\u00eater la contraception par pr\u00e9caution.<\/span><\/p>\n

Les habitu\u00e9s se sont mis en mode attaque et ont dit \u00e0 la commentatrice qu'elle devait s'armer de preuves scientifiques si elle voulait faire des recommandations aussi dramatiques. Pour sa d\u00e9fense, la femme a partag\u00e9 ceci <\/span>article de NPR<\/span><\/a> sur le versement par Merck de $100 millions de dollars pour r\u00e9gler des milliers de litiges concernant le NuvaRing.<\/span><\/p>\n

Voici la r\u00e9ponse de l'administrateur de la page Facebook (je promets que je n'invente rien) : \"La radio publique nationale est votre source ? C'est un organe d'information. Son travail consiste \u00e0 faire du sensationnel... Les m\u00e9thodes combin\u00e9es sont s\u00fbres\". Elle a r\u00e9pliqu\u00e9 en publiant un <\/span>page web de Planned Parenthood<\/span><\/a> qui parlait de la s\u00e9curit\u00e9 relative de l'utilisation du NuvaRing. Je n'ai pas pu me retenir. J'ai r\u00e9pondu : \"Planned Parenthood est votre source ? Son travail consiste litt\u00e9ralement \u00e0 promouvoir les contraceptifs\".<\/span><\/p>\n

L'administrateur de la page a d\u00e9clar\u00e9 que son groupe Facebook n'\u00e9tait pas adepte des th\u00e9ories du complot et que tout point de discussion devait \u00eatre \u00e9tay\u00e9 par des donn\u00e9es scientifiques solides provenant de sources fiables telles que le Planning familial. J'ai donc demand\u00e9 si le<\/span> Journal de l'obst\u00e9trique et de la gyn\u00e9cologie<\/span><\/i> \u00e9tait suffisamment solide et citait cette <\/span>article de recherche<\/span><\/a>.<\/span><\/p>\n

Je me suis ensuite adress\u00e9 directement \u00e0 la jeune femme atteinte d'une maladie auto-immune : \"Ces assurances anecdotiques ne sont pas pertinentes. La chimie de votre corps est unique et le fait que vous souffriez d'une maladie auto-immune pourrait vous rendre plus sensible \u00e0 certains effets secondaires. Vous devriez noter tout changement dans vos sympt\u00f4mes depuis que vous avez commenc\u00e9 \u00e0 prendre le NuvaRing et prendre rendez-vous avec votre rhumatologue et votre gyn\u00e9cologue obst\u00e9tricien pour en discuter.\"<\/span><\/p>\n

Dans les cinq minutes qui ont suivi, j'ai \u00e9t\u00e9 expuls\u00e9 du groupe et je ne pouvais plus voir aucun des fils de discussion.<\/span><\/p>\n

J'ai \u00e9t\u00e9 choqu\u00e9e. Le seul nom dont je me souvenais du d\u00e9bat \u00e9tait celui de la femme qui avait sugg\u00e9r\u00e9 \u00e0 la femme symptomatique de retirer son NuvaRing. Je lui ai envoy\u00e9 un message direct pour lui dire que j'avais \u00e9t\u00e9 bloqu\u00e9e et elle m'a r\u00e9pondu : \"Je n'ai jamais vu une attitude aussi mauvaise de la part de l'administrateur d'un groupe. C'est terrible ! Je ne suis pas contre les contraceptifs hormonaux, mais je pense que les gens doivent pouvoir choisir en toute connaissance de cause. Ces personnes semblent agir pour le compte des services de relations publiques des soci\u00e9t\u00e9s pharmaceutiques\".<\/span><\/p>\n

En effet, c'est le cas.<\/span><\/p>\n

Cr\u00e9er des espaces pour parler franchement des effets secondaires des contraceptifs<\/h2>\n

Depuis cette exp\u00e9rience, j'ai r\u00e9fl\u00e9chi \u00e0 la difficult\u00e9 pour les femmes d'obtenir de vraies r\u00e9ponses sur les effets secondaires de leur contraception.<\/span><\/p>\n

J'ai constat\u00e9 que beaucoup de femmes sont plus qu'inqui\u00e8tes au sujet de leur contraception. Elles ont l'impression que leur m\u00e9decin ne leur dit pas toute la v\u00e9rit\u00e9. Certaines h\u00e9sitent \u00e0 en parler avec leur m\u00e9decin parce qu'elles ont \u00e9t\u00e9 rejet\u00e9es, voire ridiculis\u00e9es, pour avoir os\u00e9 remettre en question la pilule.<\/span><\/p>\n

J'ai donc cr\u00e9\u00e9 un nouveau groupe Facebook intitul\u00e9, <\/span>Parlons franchement de la contraception<\/span><\/a>. Si vous avez des questions ou des inqui\u00e9tudes concernant votre contraception ou si vous pouvez parler ouvertement et honn\u00eatement avec des femmes qui en ont, j'aimerais vous inviter \u00e0 vous joindre \u00e0 la <\/span>Groupe Facebook<\/span><\/a>.\u00a0<\/span><\/p>\n

L'objectif de ce groupe est de permettre \u00e0 ces femmes de discuter ouvertement et honn\u00eatement de leurs pr\u00e9occupations, et non de leur donner de fausses assurances qui semblent avoir \u00e9t\u00e9 r\u00e9dig\u00e9es par un service de relations publiques de l'industrie pharmaceutique. Cette page n'a pas pour but de fournir des conseils m\u00e9dicaux ou de remplacer le traitement m\u00e9dical dont elles ont besoin. Toutefois, elle vise \u00e0 s'assurer qu'elles sont pleinement inform\u00e9es des risques associ\u00e9s \u00e0 la contraception hormonale et qu'elles sont encourag\u00e9es \u00e0 obtenir l'aide dont elles ont besoin.\u00a0<\/span><\/p>\n

En effet, au cours de mes recherches sur les effets secondaires des contraceptifs, j'ai lu trop d'histoires de femmes qui sont mortes ou qui ont failli mourir des suites de r\u00e9actions ind\u00e9sirables aux contraceptifs pour pouvoir balayer du revers de la main les sympt\u00f4mes d'une femme.<\/span><\/p>\n

Suivez ce lien pour rejoindre le groupe Facebook \"Straight Talk About Birth Control\" : <\/span>https:\/\/www.facebook.com\/groups\/898055200553336\/<\/a><\/span><\/em><\/p>","protected":false},"excerpt":{"rendered":"Depuis que j'ai commenc\u00e9 mes recherches sur les effets secondaires des contraceptifs et leurs cons\u00e9quences sur la sant\u00e9 pour mon livre In...","protected":false},"author":53,"featured_media":3577,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_kad_blocks_custom_css":"","_kad_blocks_head_custom_js":"","_kad_blocks_body_custom_js":"","_kad_blocks_footer_custom_js":"","csco_singular_sidebar":"","csco_page_header_type":"","csco_page_load_nextpost":"","csco_post_video_location":[],"csco_post_video_url":"","csco_post_video_bg_start_time":0,"csco_post_video_bg_end_time":0,"footnotes":""},"categories":[5183,5266],"tags":[1163],"class_list":{"0":"post-3535","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-birth-control-issues","8":"category-in-the-news","9":"tag-birth-control-side-effects","10":"cs-entry","11":"cs-video-wrap"},"acf":[],"yoast_head":"\nHow I Got Kicked Out of a Facebook Group on Birth Control Side Effects - 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